See on Scoop.it – Health Care Social Media Monitor
This is an article that summarises the outcomes of our patient perspective interview series.
Marie Ennis-O’Connor‘s insight:
The findings:
1. patients use social media for info and for sharing and connecting
2. patient experience would be easier if education and health information exist
3. health information is crucial for Rare Disease
4. patients want openness, transparency and inclusion from pharma
See on www.pharmaphorum.com
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