Posted in #HCSM

Social Media: A New Dimension In Health Research #HealthXPh

I’m so honored to have been invited to give the opening keynote address at the 3rd #HealthXPh Philippine Healthcare Social Media Summit  this week. I love this year’s theme of  “Social Media & Health Research: Connections that Matter.

My presentation highlights social media as a dynamic platform to conduct research on a global scale and to amplify and disseminate research findings. I focus on an understanding of some key characteristics of social media which can be leveraged for research purposes, such as interactivity and real-time communication on a global scale. What this presents is an opportunity for conducting research with an existing audience of highly targeted, motivated and connected patients.

I recommend tapping into the power of existing patient networks through social media as a means to mobilize and accelerate research faster than ever before. However, I stress that online communities are not just there to be taken from, but also given to. So I challenge researchers to consider how they might build trust and authenticity with a community of e-patients.

I finished my keynote presentation by sharing some best practice tips and left the audience with a final challenge to go beyond a basic level of social media activity to become exceptional digital communicators.  I ended with one of my favourite quotes from social media marketing guru Seth Godin.

sethgodingoodenough

Posted in #HCSM, E-Patient, Ehealth

Internet Use Frequency and Patient-Centered Care: Measuring Patient Preferences for Participation

The Internet is bringing fundamental changes to medical practice through improved access to health information and participation in decision making. However, patient preferences for participation in health care vary greatly. Promoting patient-centered health care requires an understanding of the relationship between Internet use and a broader range of preferences for participation than previously measured.

The Health Information Wants Questionnaire (HIWQ) was administered to gather data about patients’ preferences for the (1) amount of information desired about different aspects of a health condition, and (2) level of decision-making autonomy desired across those same aspects. The study concluded that Internet use frequency has a positive relationship with the overall preferences for obtaining health information and decision-making autonomy, but its relationship with different types of preferences varies. These findings have important implications for medical practice.

See on www.jmir.org