Sharp insight as always from Carolyn Thomas
by Carolyn Thomas ♥ @HeartSisters
I read recently about a conference on breast reconstructive surgery following mastectomy, to which not one single Real Live Patient who had actually undergone breast reconstructive surgery following mastectomy was invited to participate. This is, sadly, yet another example of “Patients Excluded” health care conferences – in stark contrast to the growing number of notable conferences that have garnered the “Patients Included”designation.*
The result of attending a “Patients Excluded” conference is just as you might imagine: hundreds of people working in healthcare getting together to talk at each other about caring for people who aren’t even at the table. Or, as one physician arguing for “Patients Excluded” conferences protested online:
“I already hear patients’ stories all day long in our practice. Why should I have to listen to more stories at my medical conferences?”
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One thought on ““We are all patients.” No, you’re not.”
Thank you so much, Marie, for reposting this here. I’ve been truly overwhelmed by the response – it appears we’ve struck a nerve here. And I’m especially encouraged by seeing that many of the comments and reTweets are coming in from physicians and nurses.