Articles

Posted in #HCSM

Utilizing Social Media to Study Information-Seeking and Ethical Issues in Gene Therapy

See on Scoop.itHealth Care Social Media Monitor

Utilizing Social Media to Study Information-Seeking and Ethical Issues in Gene Therapy

Marie Ennis-O’Connor‘s insight:

Background: The field of gene therapy is rapidly evolving, and while hopes of treating disorders of the central nervous system and ethical concerns have been articulated within the academic community, little is known about views and opinions of different stakeholder groups.
Objective: To address this gap, we utilized social media to investigate the kind of information public users are seeking about gene therapy and the hopes, concerns, and attitudes they express.
Methods: We conducted a content analysis of questions containing the keywords “gene therapy” from the Q&A site “Yahoo! Answers” for the 5-year period between 2006 and 2010. From the pool of questions retrieved (N=903), we identified those containing at least one theme related to ethics, environment, economics, law, or society (n=173) and then characterized the content of relevant answers (n=399) through emergent coding.
Results: The results show that users seek a wide range of information regarding gene therapy, with requests for scientific information and ethical issues at the forefront of enquiry. The question sample reveals high expectations for gene therapy that range from cures for genetic and nongenetic diseases to pre- and postnatal enhancement of physiological attributes. Ethics questions are commonly expressed as fears about the impact of gene therapy on self and society. The answer sample echoes these concerns but further suggests that the acceptability of gene therapy varies depending on the specific application.
Conclusions: Overall, the findings highlight the powerful role of social media as a rich resource for research into attitudes toward biomedicine and as a platform for knowledge exchange and public engagement for topics relating to health and disease.

(J Med Internet Res 2013;15(3):e44)
doi:10.2196/jmir.2313

 

See on www.jmir.org

Posted in #HCSM, Pharma

Unreported side effects of drugs found using Internet search data

Using data drawn from queries entered into Google, Microsoft and Yahoo search engines, scientists at Microsoft, Stanford and Columbia University have for the first time been able to detect evidence of unreported prescription drug side effects before they were found by the Food and Drug Administration’s warning system.

Using automated software tools to examine queries by six million Internet users taken from Web search logs in 2010, the researchers looked for searches relating to an antidepressant, paroxetine, and a cholesterol lowering drug, pravastatin. They were able to find evidence that the combination of the two drugs caused high blood sugar.

The study, which was reported in the Journal of the American Medical Informatics Association on Wednesday, is based on data-mining techniques similar to those employed by services like Google Flu Trends, which has been used to give early warning of the prevalence of the sickness to the public.

See on www.nytimes.com

Posted in #HIT, Ehealth

What’s the future of healthcare?

The man once hailed by GQ Magazine as one of the 12 “rock stars of science” doesn’t predict a rosy future for hospitals or medical clinics. But he does expect the individual consumer to be much more aware and proactive about healthcare.

In a Tuesday morning 2013 HIMSS Conference & Exhibition keynote replete with pop culture references and visual guides, Eric J. Topol, director of the Scripps Translational Science Institute and author of The Creative Destruction of Medicine: How the Digital Revolution Will Create Better Health Care, delivered a ringing endorsement of the smartphone as the healthcare delivery platform of the future.

Digital health has gotten to a point, he said, where the average consumer can measure and track vital signs and other physiological data through his or her smartphone, thereby creating a “Google map of each individual.” That, he said, flies in the face of America’s healthcare industry, which is poised to experience a technological revolution similar to the ‘Arab Spring” revolts that swept through the Mideast.

“We practice medicine today at a population level,” said Topol, who is also a cardiologist and the West Endowed Chair of Innovative Medicine at San Diego-based Scripps Health. “We do everything the same. We don’t recognize each person as an individual.”

And digital health, he said, will change all of that.

Topol argued that population health leads to wasteful and even potentially dangerous practices, such as prostate exams and mammograms. Digital health tools would enable each individual to determine if he or she would need a test, he said.

The smartphone – the “lab on a chip” – can and will replace the annual physical, Topol predicted, and offer opportunities to screen for a wide variety of ailments, from lung disease and eye problems to heart issues, high blood pressure and diabetes.

Topol predicted that healthcare would move away from the hospital – which George Orwell once called “the antechamber to the tomb” – and toward the home, with consumers in charge of their own health and health data and physicians propelled into the role of specialists.

He also touted the development of handheld genome sequencers, and said science and medicine are moving towards a day when an individual’s genomes can be mapped and used to detect, cure and possibly even prevent diseases like cancer.

And all it’s going to take, he said, is a sense of empowerment on the part of the individual, armed with a smartphone.

‘What we need to do is tear down that wall,” he said.

See on www.healthcareitnews.com