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Posted in Conference, Storify

.Med Conference Dublin

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Medicine, as we know it, is undergoing a radical transformation. New innovations in technologies such as computing, design, biosensors and social media will fundamentally revolutionise the way in which we learn and practice medicine.

Chaired by Dr. Ronan Kavanagh,the .Med Conference brought together some of the top thinkers and innovators in medicine to speak about how we can harness new technologies to improve the quality of medical care.

Grainne Lynch, Health Events, Brian McGowan, author and speaker, Marie Ennis O’Connor, Health 2 Dublin
Engaging patients with video technology – John Brownlee, Clear.MD
Professr Declan Lyons speaking on Deploying Mobiles Apps for Health & Wellbeing
Liam Ryan of GetHealth
Dr Ronan Kavanagh sharing his favourite medical blogs

Among the many compelling talks, Dr Peter Lovatt, (@dancedrdance) literally had the audience dancing during his fascinating talk on the psychology of dancing, and its effects on the symptoms of Parkinson’s Disease.

Dr Peter Lovatt, Dance Psychology Lab, Herts University
It was a highly energetic and informative meeting, and to catch a flavour of what it was all about, check out this storify.

 

Posted in HCSM

Five strategies for finding better health info online

See on Scoop.it – Journeying Beyond Breast Cancer

1) Do a better search:

Bookmark sites that are affiliated with trusted sources—that way, you know the articles are well researched and up-to-date.

2) Avoid doing broad searches:

Google “knee pain” and you’ll get about 30 million results. “The drawback of a general search, whether you need quick help for a burn on your hand or more insight into a just-diagnosed allergy, is you get a mix of information, some of which could be inaccurate or irrelevant,” says Lisa Gualtieri, an assistant professor at Tufts University School of Medicine, who specializes in tech and health.

 

3) Set up e-subscriptions:
“We’re seeing an evolution from patients searching for information online to information finding patients,” says Dr. Bryan Vartabedian, a Houston doctor who writes 33charts.com.

 

4) Sign up for Google Alerts:

Sign up for a Google Alert (http://www.google.com/alerts) on any topic, and an email with links will show up daily, weekly, or as new content is available (your choice). You can also pick the media sources, like news outlets or videos. Be sure to click on “only the best results.”

5) Read right to the end:
Lists of symptoms that ran from general to specific (and vice versa) were more likely to make healthy people think they were at higher risk for cancer, compared with lists that mixed the order of general symptoms (like fatigue) and illness-specific signs, finds a recent study in Psychological Science. Order varies by site, so read it all.

See on www.foxnews.com

Posted in HCSM

Open health, patient privacy and the digital divide

See on Scoop.it – Health Care Social Media Monitor

Open health refers to a set of developing information technologies that make it easier for patients, professionals and administrators to access health-care information or make it anonymous and open to the public.

 

This is done by integrating existing health-care records and data. It is hoped the result will be more health information for more people to access more easily.

 

Open health requires online access. It’s easy to think of this as a background issue because the national broadband network is due to roll out in Australia over the next few years. But the so-called digital divide is a real concern in Australia and around the world.

 

What’s more, the world isn’t just divided between those who have internet access and those who don’t. We also need to consider the staggering differences between the quality of access, individual internet literacy, and how these variables can be leveraged to create good outcomes.

 

Although the digital divide is closing, a large number of vulnerable individuals still don’t have basic internet access. And technological literacy is a necessary part of using open health services.

 

Open health will hold data on vulnerable populations that those populations may not be able to use through lack of access. The elderly, for instance, are major users of health-care services so we need to ensure that they have the technological access and the capacity to engage with open health.

 

New technologies can bring huge benefits to those with the resources, education, and opportunity to access them. Open health is no exception.

 

Perhaps the most obvious concern for open data policy is the privacy of individuals. If there’s enough identifiable information in a data set that has become public, then individuals can be picked out and potentially targeted by private businesses, government agencies, and even by police in ways they might not want.

 

Even if the intentions of the viewer are good, we still have the right to expect that our personal information remains anonymous and our privacy is protected.

 

Linked data can be very useful to citizens and businesses alike, but carries with it the risk of de-anonymisation. There’s a concern that primary data, which hasn’t been interpreted or aggregated, can be used to identify individuals.

 

The important thing about linking data is that individual data sets, such as age, height, car model and postcode, are not considered overly private. And a lot of this sort of innocuous personal information can be accessed online – through sites such as Facebook, and census data, for instance.

 

We should also be concerned about who can exploit the data, and how much control we have over access. Some of us may not want even our anonymised data being used in ways we don’t agree with.

Open health should make opting out simple. While large scale opt-outs are likely to diminish the utility of data, we have to weigh the trade-off between privacy and potential innovation carefully.

 

Finally, to whom do we turn if something goes wrong? With a move towards more automated and rapid release of data, there’s more urgency around what options individual citizens and groups have to question, comment, or contest the release and use of open data.

 

See on www.transformingthenation.com.au