This is a copy of a talk I gave yesterday at the April meeting of Health 2.0 Dublin on the topic of the empowered patient.
About Health 2.0’s Dublin chapter
Health2Dublin, is one of 40+ chapters in cities around the globe, that facilitates and creates events that promote and demonstrate the innovation and promise that information technology is bringing to our health and the practice of medicine. By putting the leaders of the Irish healthcare innovation scene together in one place, we are creating the future of healthcare. Health2Dublin meets on the first Wednesday of every month and welcomes new members.
Learn more at: http://www.health2dublin.com/
Dr. Eric Topol’s introduction to Dave deBronkart’s new book Let Patients Help.
See on epatientdave.com
About eight in 10 psoriasis patients who use health care social networks say they do so primarily to learn how others manage their disease, and get practical tips and advice they couldn’t find elsewhere, according to a survey conducted by the National Psoriasis Foundation, Manhattan Research and Inspire, a company that builds and manages online patient communities.
The millions of people with psoriasis, including the one million visitors to Talk Psoriasis in 2012, are not alone in their use of social media for health. A 2011 Pew Research Center study found that one in four Internet users living with a chronic ailment have gone online to find others with similar health concerns.
See on www.biotech-now.org
The most accurate measure of “patient-centered” care, however, lies not in intentions but implementation
The old culture will give way to a new, Information Age culture that will bolster the “moral and cognitive bases” of medical professionalism by anchoring them, finally, in genuine power sharing and equal partnership.
See on healthworkscollective.com
To help providers increase patient engagement through mHealth, the NeHC has developed a five-step patient engagement framework.
“Patient engagement” is one of the biggest buzz phrases in mobile healthcare (mHealth). Dr. Fastad Mostashari, who serves as National Coordinator for IT the National eHealth Collaborative (NeHC), has said that “patient engagement is the blockbuster drug of the century.”
See on www.healthtechzone.com
Social media on the Internet are empowering, engaging, and educating health care consumers and providers. While consumers use social media — including social networks, personal blogging, wikis, video sharing, and other formats — for emotional support, they also heavily rely on them to manage health conditions.
The Internet has evolved from the information-retrieval of “Web 1.0” to “Web 2.0,” which allows people who are not necessarily technologically savvy to generate and share content. The collective wisdom harnessed by social media can yield insights well beyond the knowledge of any single patient or physician, writes report author Jane Sarasohn-Kahn. The outcome of this development is “Health 2.0” — a new movement that challenges the notion that health care happens only between a single patient and doctor in an exam room.
Using examples, this report describes how the web is becoming a platform for convening people with shared concerns and creating health information that is more relevant to consumers. Social networks, ranging from Facebook to specific disease-oriented sites, are proliferating so rapidly that new services are already under development to help health consumers navigate through the networks.
The report details how innovative collaborations online are changing the way patients, providers, and researchers learn about therapeutic regimens and disease management. It examines the benefits and concerns regarding Health 2.0 and includes an extensive listing of health media resources. According to the report, the growing demand for transparency will drive the evolution of social media in health. A growing array of tools will become available that are increasingly mobile, as well as personal health data storage in commercial products like Microsoft Health Vault, Google Health, and others. The author concludes that the ongoing demands of a consumer-driven health marketplace will inspire innovation in applications that integrate clinical, financial, and ratings information.
See on www.chcf.org
Marie Ennis-O’Connor‘s insight:
Report from IOM workshop on what can be done to increase knowledge and research on how to improve health. Advice offered to physicians and other providers during the IOM workshop included:
- Teaching patients how to obtain and use their personal health information
- Teaching consumers how to navigate the health system effectively
- Presenting patients with options and listening to their concerns and feedback
- Establishing a connection and relationship with patients and their caregivers
- Not using jargon when presenting information to patients and caregivers
- Finding new ways to listen to patients and their families
See on www.medpagetoday.com
What exactly is patient engagement? According to the National eHealth Collaborative’s 2012 stakeholder survey released last month, there is little agreement among health leaders. They currently use a variety of definitions that range from patients having access to educational materials to patients using their own electronic health record to transmit data to outside organizations.
Survey respondents were asked to choose their two top definitions from among 10 choices. They also could write in their own definition. The top five responses include:
Patient uses educational material and online resources to learn about better health or their own health conditions (64.0 percent)Patient uses tools and resources to manage his or her medical record and other health data (58.7 percent)Patient feels comfortable challenging doctor when something doesn’t seem right or when explanations are not clear (41.3 percent)Patient feels comfortable discussing health issues and questions with doctor or nurse face-to-face (38.4 percent)Patient communicates with doctor about changes in health status in a timely way (38.4 percent)
Survey respondents may not define patient engagement the same way, but an overwhelming 95 percent said the issue is “very important” or “important” in transforming healthcare. Only 5 percent called it “somewhat important,” while no respondents characterized it as “not important.”
See on www.fiercehealthcare.com