Posted in HCSM

The Apomediated World: Regulating Research When Social Media Has Changed Research

See on Scoop.itBlogging For Business

Marie Ennis-O’Connor‘s insight:

Social Media, like Facebook and Twitter, are having a profound effect on the way that human subjects research is being conducted. In this article Dan O’Connor argues that traditional research ethics and regulations may not easily translate to the use of social media in human subjects research. Using the conceptual model of apomediation, which describes the peer-to-peer way in which health information is shared via social media, he suggest that we may need to think again about the suitability of current regulations to deal with social media research.

See on onlinelibrary.wiley.com

Posted in E-Patient, Ehealth, HCSM

Internet Use Frequency and Patient-Centered Care: Measuring Patient Preferences for Participation

The Internet is bringing fundamental changes to medical practice through improved access to health information and participation in decision making. However, patient preferences for participation in health care vary greatly. Promoting patient-centered health care requires an understanding of the relationship between Internet use and a broader range of preferences for participation than previously measured.

The Health Information Wants Questionnaire (HIWQ) was administered to gather data about patients’ preferences for the (1) amount of information desired about different aspects of a health condition, and (2) level of decision-making autonomy desired across those same aspects. The study concluded that Internet use frequency has a positive relationship with the overall preferences for obtaining health information and decision-making autonomy, but its relationship with different types of preferences varies. These findings have important implications for medical practice.

See on www.jmir.org

Posted in HCSM

Evaluation of a Web-Based Program Promoting Healthy Eating and Physical Activity for Adolescents

See on Scoop.itHealth Care Social Media Monitor

Marie Ennis-O’Connor‘s insight:

This randomized clinical trial tested the impact of a website promoting nutrition and physical activity for adolescents (Teen Choice: Food and Fitness). Participants, (408) 12- to 17-year-old adolescents in the Houston area, completed online surveys measuring diet, physical activity, sedentary behavior and diet/physical activity mediators at baseline. After randomization, they were asked to log onto either the intervention or the control condition website weekly for 8 weeks to review web content and set goals to improve dietary and physical activity behaviors. Post-test occurred after 8 weeks. Logistic regression analyses and one-way analyses of covariance were used in the analyses. At post, more intervention group adolescents reported eating three or more daily vegetable servings in the past week compared with the control group (P < 0.05); both groups reported significant increases in physical activity (P < 0.001) and significant decreases in TV watching (P < 0.01). Average log on rate was 75% over the 8 weeks; there was no difference by condition. The website enabled adolescents to improve vegetable intake and daily physical activity, reduce sedentary behavior and had a high log on rate. Future research should identify effective methods for disseminating this website to wider audiences.

See on her.oxfordjournals.org

Posted in HCSM

How to make the most of a medical conference: a personal reflection on EULAR 2013

See on Scoop.itHealth Care Social Media Monitor

I have just returned from the annual European Rheumatology EULAR 2013 meeting in Madrid. This massive conference was attended by about 14,000 delegates, with over 500 ‘posters’ per day and over 230…

Marie Ennis-O’Connor‘s insight:

Some excellent suggestions here, particularly in relation to using Evernote

See on www.philipgardiner.me.uk

Posted in HCSM

Healthcare: Don’t Fear the “What Ifs” in Social Media

See on Scoop.itHealth Care Social Media Monitor

Interview with Farris K. Timimi, Medical Director of the Mayo Clinic Center for Social Media

Why has healthcare, a profession that has roots firmly planted in the power of communication, been so reluctant to consider social networking and social media as forms of engagement? Whenever I visit with providers and organizations that seem hesitant to explore social networking, they usually share a series of reasons for their hesitancy, all of which fall into a broad category that I refer to as “what ifs.” What if we have a patient privacy violation? What if social media access makes our employees less efficient and productive? What if my already extensive clinical time demands prevent me from participating in social media? What if a mistake happens, and it is digitally advertised to a much larger audience? What if poor “phone hygiene” affects clinical care? (This brings to mind the seemingly common image of the intern who spends the bulk of morning rounds on a smartphone.)

Fundamentally, these potential concerns, these “what ifs,” and our resultant reluctance to meet our patients where they are spending the majority of their time, do more than limit our capacity for engagement.

See on blogs.einstein.yu.edu