Posted in #HCSM

Let’s all sing like the birdies sing

pat_health's avatarDays of Past Futures

song_sparrow
Doctors who aren’t on Twitter are missing out. Really.
That conclusion came through loud and clear from recent conversations I had with several physicians in the small Ontario city of Kingston recently. These individuals represented the whole spectrum of the medical profession from student, to primary care community care doc to specialists and academic teachers.
Given that only an estimated 1 in 10 Canadian doctors uses Twitter even now, it was somewhat surprising how adamant these physicians were about the benefits of the tool for medical professionals, as well as patients and the public.
They were very clear that they felt Twitter represented a unique channel for providing new connectivity between doctors, between medical teachers and students, and between physicians and other members of the community.
Many of those I interviewed had come to Twitter via non-medical routes – one initially used Twitter for traffic reports, another to connect with…

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Community Management That Works: How to Build and Sustain a Thriving Online Health Community

See on Scoop.itHealth Care Social Media Monitor

Community Management That Works: How to Build and Sustain a Thriving Online Health Community

Marie Ennis-O’Connor‘s insight:

ABSTRACT

Health care professionals, patients, caregivers, family, friends, and other supporters are increasingly joining online health communities to share information and find support. But social Web (Web 2.0) technology alone does not create a successful online community. Building and sustaining a successful community requires an enabler and strategic community management. Community management is more than moderation. The developmental life cycle of a community has four stages: inception, establishment, maturity, and mitosis. Each stage presents distinct characteristics and management needs. This paper describes the community management strategies, resources, and expertise needed to build and maintain a thriving online health community; introduces some of the challenges; and provides a guide for health organizations considering this undertaking. The paper draws on insights from an ongoing study and observation of online communities as well as experience managing and consulting a variety of online health communities. Discussion includes effective community building practices relevant to each stage, such as outreach and relationship building, data collection, content creation, and other proven techniques that ensure the survival and steady growth of an online health community.

 

See on www.jmir.org

Posted in #HCSM

Why Online Patient Communities are Better than Real Life Support Groups

David Lee Scher, MD's avatarThe Digital Health Corner

A support group  has many potential benefits, some of which include improving coping skills, reducing anxiety, depression, isolation, ignorance about the condition and others.  Online patient communities (OPCs) are a recent phenomenon.  Some are open (with respect to type of member or fee) and some are more focused and closed.  Irrespective of the type, OPCs have blossomed. It is a major indication of social media’s penetration into healthcare (or vice versa) and why physicians need to establish a presence in social media.  While there are still reasons why support groups are popular, OPCs have definite advantages. I will highlight a few of them.

1.    Many patients and caregivers cannot physically attend a support group. In the early phase of a support group of patients with implantable defibrillators I led for over 20 years, I was informed of scheduling conflicts and transportation difficulties (some patients coming from distances…

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Hashtags for Twitter Cancer Communities

Taking hashtags to the next level. Wonderful article.

pfanderson's avatarEmerging Technologies Librarian

Top ten hashtags associated with #cancer

Librarians have been geeking out, or grossing out, over hashtags since they first appeared. Some of the conversation has been about concerns over ‘allowing’ the public to define their own metadata, while much of it has been the flip side of trying to engage the public in generating metadata for library online collections, and thus enriching access and awareness for those collections.

Naturally, the general public simply move forward with creating new hashtags for their own purposes, largely unaware of the conversations and concerns of professionals in the area of metadata. This is as it should be. The idea of a Folksonomy, a.k.a. folk taxonomy, as originated by Thomas Vanderwal centers around the social aspect — real people, real folk, coming up with language that means something to them to describe content that matters to them with ideas that matter to them. Meaning.

I could go on about this for…

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