Posted in E-Patient

Patients band together via Web, persuading doctors to study their rare condition

See on Scoop.itHealth Care Social Media Monitor

Nefertari Nelson-Williams was about to deliver her fifth child when she suffered a nearly fatal heart attack in 2008.The healthy former model suffered a tear in a coronary artery from a rare condition called SCAD (spontaneous coronary artery dissection) that could have killed her and her baby. “I couldn’t understand how something so rare could happen to me,” said Nelson-Williams, 38, now a freelance writer.

A decade ago, Nelson-Williams and the estimated 25 million Americans afflicted with rare disorders would likely have suffered in isolation, knowing little about their condition and living with fears of recurrence and passing it to their children.

Now, because of a cadre of Internet-savvy SCAD survivors who banded together and mobilized like a team of Navy SEALs, Nelson-Williams has joined an online patient-support community, learned more about her condition, and plans to participate in a patient-driven study to find the causes and cure for SCAD.

See on www.philly.com

Posted in #HCSM, E-Patient

patient use of social media helps push diabetes surgery into mainstream

A new study has found that diabetes patients who had tried bariatric surgery (weight loss surgery) used social media outlets to advocate for the procedure and show how it had positively impacted their Type II diabetes. 

Business intelligence company Wool.labs used its technology WebDig to track every conversation accessible on the Internet and determined the trends among diabetes patients and healthcare providers as related to options to help manage diabetes including bariatric surgery.

We believe that the patient wave of support in social media has helped push diabetes surgery into mainstream acceptance faster~ Michele Bennett, chief operating officer of Wool.labs.

Current trends show that patient conversation was ultimately a key contributor to physician acceptance of weight loss surgery as a tool to control diabetes.

Social media provides a unique window into patient and physician experiences. We can also see how those perceptions impact the patients relationship with the healthcare community ~  Scott Reese, chief executive officer of Wool.labs

Source: HealthCare IT News

Posted in E-Patient, Health Literacy

How do you feel? Inaccurate health info is readily available to those who aren’t fluent in search

‘If you consider yourself a discerning web surfer, how do you feel knowing inaccurate health information is so readily available to those who aren’t Google-fluent?

Have you ever headed that risk off at the pass by performing medical searches for your loved ones? How do you imagine your doctor would react?’

See on mashable.com