Articles

Posted in #HCSM

Big Data in Healthcare: Social Media Can Help Track Disease Outbreaks, Pandemics

See on Scoop.itHealth Care Social Media Monitor

While most industries today collect data – a lot of data – the healthcare industry may take the proverbial cake when it comes to the amount of potential data to collect. Think about it: given that science had now decoded the human genome, every patient walks into the front door of a doctor’s office, clinic or hospital automatically carrying about a terabyte of data before any patient history is even taken or physical examination is begun.

Beyond the codes contained in a patient’s body or the background contained in his or her medical history, or the images that can be captured via x-rays, CT scans, PET scans and MRIs, there is a plethora of other information that can be added to the “big data” pile, according to Frank X. Speidel, MD, writing for HIT Consultant.

“Beyond clinical, physiologic metrics, we ought also to capture the data of all that affects the patient,” writes Speidel. “Much of this expanded data will be unstructured such as is present in social network data set or quantified but predicted such as weather reports and pollen counts.”

Speidel recounts the story of two college students who presented to a hospital where he once worked as an emergency physician with lesions characteristic of meningococcemia. In an era before social media, university officials had to painstakingly piece together the students’ movements and activities over the past several days in order to determine whom the students had had close personal contact with.

“Flash forward to 2013,” writes Dr. Speidel. “Given the same presentation of two college students with meningococcemia, how much improved would our care be if we had access to their Twitter and Facebook data as we sought to identify those who had close contact with the students?”

Public health officials have already begun to tap social media as an excellent tool for tracking disease outbreaks. This, of course, raises privacy issues, which are much on the nation’s mind since the revelations about the NSA’s data tracking.

“There’s a challenge here in that some of these [data] systems are tightening in terms of access,” John Brownstein, director of the computational epidemiology group at Children’s Hospital Boston and an associate professor of pediatrics at Harvard Medical School, told the NIH publication Environmental Health Perspectives. “But we are seeing a movement towards data philanthropy in that companies are looking for ways to release data for health research without risking privacy. And at the same time, government officials and institutions at all levels see the data’s value and potential.”

In the future, we might see ourselves signing waivers or addenda to our social media accounts indicating that it’s OK for health officials to mine our data for critical information in case of an outbreak or a pandemic. It’s one more element of “big data” that could ultimately be used to save lives.

See on www.healthtechzone.com

Posted in #HCSM

Let’s all sing like the birdies sing

pat_health's avatarDays of Past Futures

song_sparrow
Doctors who aren’t on Twitter are missing out. Really.
That conclusion came through loud and clear from recent conversations I had with several physicians in the small Ontario city of Kingston recently. These individuals represented the whole spectrum of the medical profession from student, to primary care community care doc to specialists and academic teachers.
Given that only an estimated 1 in 10 Canadian doctors uses Twitter even now, it was somewhat surprising how adamant these physicians were about the benefits of the tool for medical professionals, as well as patients and the public.
They were very clear that they felt Twitter represented a unique channel for providing new connectivity between doctors, between medical teachers and students, and between physicians and other members of the community.
Many of those I interviewed had come to Twitter via non-medical routes – one initially used Twitter for traffic reports, another to connect with…

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Community Management That Works: How to Build and Sustain a Thriving Online Health Community

See on Scoop.itHealth Care Social Media Monitor

Community Management That Works: How to Build and Sustain a Thriving Online Health Community

Marie Ennis-O’Connor‘s insight:

ABSTRACT

Health care professionals, patients, caregivers, family, friends, and other supporters are increasingly joining online health communities to share information and find support. But social Web (Web 2.0) technology alone does not create a successful online community. Building and sustaining a successful community requires an enabler and strategic community management. Community management is more than moderation. The developmental life cycle of a community has four stages: inception, establishment, maturity, and mitosis. Each stage presents distinct characteristics and management needs. This paper describes the community management strategies, resources, and expertise needed to build and maintain a thriving online health community; introduces some of the challenges; and provides a guide for health organizations considering this undertaking. The paper draws on insights from an ongoing study and observation of online communities as well as experience managing and consulting a variety of online health communities. Discussion includes effective community building practices relevant to each stage, such as outreach and relationship building, data collection, content creation, and other proven techniques that ensure the survival and steady growth of an online health community.

 

See on www.jmir.org

Posted in #HCSM

Why Online Patient Communities are Better than Real Life Support Groups

David Lee Scher, MD's avatarThe Digital Health Corner

A support group  has many potential benefits, some of which include improving coping skills, reducing anxiety, depression, isolation, ignorance about the condition and others.  Online patient communities (OPCs) are a recent phenomenon.  Some are open (with respect to type of member or fee) and some are more focused and closed.  Irrespective of the type, OPCs have blossomed. It is a major indication of social media’s penetration into healthcare (or vice versa) and why physicians need to establish a presence in social media.  While there are still reasons why support groups are popular, OPCs have definite advantages. I will highlight a few of them.

1.    Many patients and caregivers cannot physically attend a support group. In the early phase of a support group of patients with implantable defibrillators I led for over 20 years, I was informed of scheduling conflicts and transportation difficulties (some patients coming from distances…

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