This week I was in Basel, Switzerland, to deliver a keynote presentation at the DayOne Conference, Shaping The Future of Health. It was a great experience and heartening to meet so many start-up companies with a real interest in working with patients in codesigning healthcare solutions.
I believe that a genuine partnership model with patients and their families and carers, will not just improve outcomes for patients but can transform the healthcare industry. I urged the audience to go beyond the patient label and engage with patients as people with valuable lived experience and expertise that they can learn from.
But even with the best intentions, it’s easy to get it wrong. So I shared a model of patient engagement based on a true partnership model that does justice to people as unique, multi-dimensional individuals who want to live the best lives they can.
As always I posted my presentation on SlideShare so please feel free to flip through the deck and if you have any questions or comments to make, I’d love to hear them.
Patient engagement has been called “the blockbuster drug of the century.” Being engaged means being an active participant in your health care and health decisions. Often the results are better medical care with fewer hassles. This video with Eve Harris, Healthcare Writer and Patient Advocate covers tips for improving your experiences with the healthcare system and becoming more actively engaged in your own well-being.
Here are some interesting excerpts from a discussion on patient engagement and health care social media at the recent Association of American Medical Colleges (AAMC) meeting.
[View the story “#AAMCJtMtg: Patient Engagement and #HCSM” on Storify]
Patient Engagement Is A Physician-Patient Communication Challenge…Not A Health Information Technology Challenge
There is no app for engaging patients in their own health care absent a strong doctor-patient relationship.
See on healthecommunications.wordpress.com
To help providers increase patient engagement through mHealth, the NeHC has developed a five-step patient engagement framework.
“Patient engagement” is one of the biggest buzz phrases in mobile healthcare (mHealth). Dr. Fastad Mostashari, who serves as National Coordinator for IT the National eHealth Collaborative (NeHC), has said that “patient engagement is the blockbuster drug of the century.”
See on www.healthtechzone.com
Marie Ennis-O’Connor‘s insight:
Report from IOM workshop on what can be done to increase knowledge and research on how to improve health. Advice offered to physicians and other providers during the IOM workshop included:
- Teaching patients how to obtain and use their personal health information
- Teaching consumers how to navigate the health system effectively
- Presenting patients with options and listening to their concerns and feedback
- Establishing a connection and relationship with patients and their caregivers
- Not using jargon when presenting information to patients and caregivers
- Finding new ways to listen to patients and their families
See on www.medpagetoday.com
What exactly is patient engagement? According to the National eHealth Collaborative’s 2012 stakeholder survey released last month, there is little agreement among health leaders. They currently use a variety of definitions that range from patients having access to educational materials to patients using their own electronic health record to transmit data to outside organizations.
Survey respondents were asked to choose their two top definitions from among 10 choices. They also could write in their own definition. The top five responses include:
Patient uses educational material and online resources to learn about better health or their own health conditions (64.0 percent)Patient uses tools and resources to manage his or her medical record and other health data (58.7 percent)Patient feels comfortable challenging doctor when something doesn’t seem right or when explanations are not clear (41.3 percent)Patient feels comfortable discussing health issues and questions with doctor or nurse face-to-face (38.4 percent)Patient communicates with doctor about changes in health status in a timely way (38.4 percent)
Survey respondents may not define patient engagement the same way, but an overwhelming 95 percent said the issue is “very important” or “important” in transforming healthcare. Only 5 percent called it “somewhat important,” while no respondents characterized it as “not important.”
See on www.fiercehealthcare.com
Interesting presentation from the Cleveland Clinic on how they have utilized social media to bring in new patients, increase brand awareness, provide education and promote research.